Ashley Riggs

Bio: I am a proud stay at home wife of the most heroic and devoted man I know, and the stay at home mother to three sons who give me purpose, give me drive, and also give me about 20 mini heart attacks a day. And I wouldn't change it. Our oldest son, Landon, passed away on September 9, 2015 after a courageous battle with sanfilippo syndrome. He was the happiest child and lived his life with a radiant smile until his very last day. Our middle son, Blake is still fighting his battle, and is the sweetest, most innocent soul I have ever known. Our youngest, Gabriel, is a typical two year old who is too inquisitive for his own good and tests the limit of my sanity and patience daily. My purpose and my drive in this life is to help others to see our journey for what it is: messy, scary, and even beautiful. I try to write as honestly as I feel, in hopes that others who read my words will find appreciation in the little things in their own lives, will be motivated to help others who haven't been as fortunate. And also so that those who are on a similar journey will know they are not alone, and it's okay to feel whatever it is you feel.

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6 thoughts on “About

  1. Hello Ashley.

    I hope your day is going well. I’m writing to you from the photo desk at Daily Mail in NYC. Our editors recently came across an article you wrote for The Mighty about your sons Landon and Blake and were really moved by your experiences. We would love to do a feature about your story on our site.

    We were hoping you might be willing to share some photos with us to help us illustrate the feature. We would of course give you full credit and can provide links to your website and/or any awareness sites about Sanfilippo Syndrome that you’d like.

    If you could give us a shout at your earliest convenience, we’d love to chat. You can email us, or call us directly at 212.379.0671.

    Thanks for you time, hope to hear from you soon!

    David Perkins
    Photo Editor
    Daily Mail Online


  2. Hello Ashley. I just read your beautiful post on SheSaid. I’m an editor with Australian parenting site Kidspot – we’d love to republish your beautiful words if we can. With full credit and links of course. I’m so sorry about the sudden loss of your beautiful boy.


  3. Ashley,
    I came across your blog from your story on The Mighty today. Like you, I am a mom of boys, and I can honestly tell you I have never read anyone put what that is like in words so honestly before. Your story is equally heartbreaking and beautiful. And your love for your boys is so genuine, real and fierce. I cannot imagine all you have been through or how you will tackle what is to come. All I can say is I am thankful to have found your blog, to know your story and because of your words, I will always remember to hold my boys a little longer and little tighter. Thank you for that.


  4. You are amazing writer Ashley. It’s best blog I’ve ever came across. Your words are strong, clear, touching, you have a lot of common sense. And what I find especially refreshing, there is no ” praise the Lord” or ” God had better plans for my boys” bullshit. I am 40 year old single mom of 6 year old, I am atheist, but it doesn’t mean my life is empty, or I don’t believe in anything. I do believe in people ( meaning humans will go far, farther than we can imagine), I believe in being kind and good to others, I believe in love. I wish you all the best from bottom of my heart.


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